Sophia, Sasha and Ben,
You have been in our thoughts and prayers. Sophia you are so beautiful. Your parents are SO special. I have some fund raising ideas that I would love to talk over with you. We send all of our love,

Hey there. I am a mom of a beautiful daughter, who had a stroke. She is a great kid, and I couldn't be prouder of her. I feel your emotions: trying to make the appointments, the therapies, negotiating with the insurance companies - all while trying to create "normal" family life for everyone. So mom, know you're not alone. Please reach out when you need to. You're doing great. xo and +vibes+.

Thank you for sending me the web-site. I will keep Sophie in my prayers. She is an adorable little girl!

I will keep you in my prayers, Sophie. I have a 20+ year-old niece who has lived with Prader-Willie. Her family, especially her mother and grandmother, who are RN's, have worked with her to help her development progress as normally as possible. Katie is a very loving, sweet girl who was able to graduate from high school by taking special classes that matched her abilities. So,Sasha and Ben,keep your spirits up.
Melissa's Roeder's "adopted stepmom"

Cris Mugrage and I would like to plan a fall dinner/dance benefit for Miss Sophia. Because neither of us live in the greater Chicago area, we are asking for some help with the planning. We are shooting for a late Sept/October date and need a place to hold the dinner/dance, food, a DJ, etc. Obviously we would like to keep our overhead as low as possible so we can give as much money as we can to Sophia's medical fund. If you know of anyone/place/thing etc that you or someone you know would be willing to donate or would like to help in the planning process, please let us know!!

You can email Melissa at melissaroeder07@yahoo.com
You can email Cris at stinamugrage@yahoo.com

Thanks so much! :)

I just wanted you to know that I'm thinking about you all! Sophie is just beautiful!

Hey Sophie, Sash and Ben- I will be thinking of you all today. Good luck!

Hey Sophie!
I am planning a surprise for you!
kt

Miss Sophia Grace,

You do not know me yet but I am staking my claim as one of your many "Aunties". I love you a lot, all the time from far away and am devoted to helping you and your family thrive.

Love and Squeezes,

Aunt Tricky

I am so glad to get to know of Sophie (and Sasha and Ben.) A dear friend of mine is named Richard. He prefers to be called Richie, and I have called him that for 20+ years. He lives with Prader-Willi Syndrome, and I have learned a great deal about PWS, but more than anything I know a man who is caring, funny and much-loved. I know a lot about PWS, and I know things that only time will teach. I can offer friendship, and a lot of hard-earned knowledge.

Tricky knows me, through the internet. I will alert some of my old co-workers about Sophie. You may be hearing from them. God bless you!

there are plenty of nice restaurants and a good movie theater in oak park... drop that baby off and let me watch her while you two go out. just tell me when.

My husband and I were very touched by your story at the Sig lam reunion. Your family is in our thoughts and prayers!

Sophie has grown into such a beautiful little girl....Believe me it gets easier yes there will be obstacles and challenges.. I remember almost now 6 yrs ago getting Olivia's diagnosis of PWS it was devastately. But we took and fought with it just as your doing... Olivia is living proof that yes our kids can grow up healthy and happy... We are having state chapter walk this summer come and join us.. our families are the greatest resource when it comes to specific PWS challenges. Just remember every child is different. Other fund raisers in honor of Sophie could be a small walk of your own and or a dinner and dance. Keep up the great job Sophie...

Sophia, I know that your mommy and daddy will do anything in the world for you, and that you are the world to them.

Sasha, I will start thinking of anyway that I can help, even if it's baby sitting so mommy and daddy can get some time together!

We do not know each other, but I will help in any way I can!
Thanks to Rebecca for sharing this.

Sasha, you know I have always had a special place for you in my heart. And Sophie has captured aforementioned heart via her adorable photos! And although I've not met Ben, I'm sure I would like him. I will do what I can. I have my thinking cap on.

I will help because I love you and your fabulous offspring! I am brainstorming as we speak.

I can't wait to meet this marvelous little lady and see her amazing ma again! We are keeping you all in our hearts, and cheering for you every day!

Miss Sophia, you have THE best parents a girl could ever hope for! You and your wonderful mother continue to inspire me on a daily basis.

Much love to you! <3

I've known Sasha for a long time, and I know that Spohie couldn't be more loved, better cared for, or surrounded by better people! Sushi, let's talk, I envision some charity poker tournaments in our future!